If you are a blogger, you probably follow blog to blog to blog, following stories that capture your interest. Or your heart.
In the past few months, I have followed two little boys, named Daylon and Jonah, both of whom have EB.
And then I found Bella. Bella, a sweet sixteen month old, was in the midst of a experimental transplant to replace her sick cells with healthy ones from her sister. There have been endless complications yet the little girl fought every day to live.
Today, Bella died.
Tonight, she is singing and dancing with angels in a body untouched by blisters and scars, unstrapped from medical devices, emptied of steroids and medications.
She is healed.
Please pray for her family as you hug yours close to you.